CHD Support Groups

Pediheart
Pediheart is an electronic mail forum for discussions on pediatric cardiology and cardiac surgery.

Heart Disease Online
An informative resource on Congenital Heart Defects with detailed articles on each form of CHD.

Hearts For Hearts Sake
A web-based support forum for CHD patients and their families, moderated by a heart-parent, Tricia Christensen.

Congenital Heart Disease Information and Resources
CHIN contains a tremendous amount of information on resources concerning congenital heart disease

Congenital Heart Anomalies Support, Education, and Resources
CHASER is a support group for families dealing with Congenital Heart Disease and its impact on family life.

Grown Up Congenital Heart Patients Association (GUCH)
Support group for adults with congenital heart defects.

Adult Congenital Heart Disease Forum
Adult Congenital Heart Disease Forum is a site devoted to birth defects of the heart in adult patients.

Kids With Heart
A large CHD support organization managed by Michelle Rintamaki and with volunteers across the US.

PD Heart
An email discussion and support group for CHD with almost 1000 members from around the world.

Adult Congenital Heart Association
A new support organization for adults with CHD

Children's Heart Society
A Canadian CHD support organization which helps co-ordinate international efforts too

Little Hearts
A New England network of families of children with CHD

CHD Webring
An e-mail based discussion group for support to CHD families.

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